Be Proactive!

Therapy Tips:

 Be Proactive 

“The person who gave me my equipment never told me that….”

 I hear those words too often when helping people with their mask fit or troubleshooting problems with their CPAP machines.  While it is concerning that so many people are not getting adequate information about how to use and care for their sleep equipment, I cannot emphasize enough the importance of becoming your own sleep health advocate.

I believe that it is the responsibility of the equipment provider to make sure that a patient has the correct equipment and knows how to use it.  However, as we have all experienced in life, we don’t always get the best care or customer service.  I recommend reading the instruction manual that comes with your CPAP machine just in case the provider forgot to tell you something.  Make sure you understand everything in the manual.  If you have any questions, call your provider for help.  Each manufacturer provides online information and phone numbers to call with questions as well.  

When it comes to your mask, you need to be even more proactive.  If the mask hurts or leaks you won’t use it.  Another statement I hear frequently from people is that their equipment company told them that their insurance only covers one kind of mask.  This is simply not true.  Some masks are more expensive than others, and some insurance plans reimburse less than others.  The equipment company is only looking out for their profit margin, not your therapy success.  

There are so many mask styles available.  Find a company that will spend the time letting you try on different mask styles before you select one.  While you still might not find the perfect mask the first time, at least you have the opportunity to make your own choice.  Unfortunately for most people, sleeping with a CPAP mask takes some experience before finding the best option. 

If you are struggling with CPAP therapy and having difficulty finding help, you can join an online forum or visit nationally recognized websites such as www.sleepapnea.org and www.sleepfoundation.org  for information and helpful resources. 

Some people adjust easily to using CPAP, while many others do not.  And the quality of sleep testing varies greatly from lab to lab.  The quality of your sleep test and the knowledge/experience of the physician ordering your sleep equipment can affect your experience with CPAP positively or negatively.  If you are having trouble adjusting to your pressure setting or mask, I recommend seeking the help of a sleep specialist if you have not done so already.

Often physicians know very little, even less than you, about living with CPAP therapy.  Do some research on your own to make sure that you are getting the equipment that you need for your specific problems and lifestyle.  Did you know that there are several different types of positive airway pressure devices?  Did you know that you should be replacing the mask cushion and/or pillows regularly to ensure a proper fit and prevent leaks?  These are common topics discussed on many forums and websites.

Unfortunately CPAP therapy is not an exact science.  Every person’s experiences and needs are different.  And there is just as much variance between healthcare and equipment providers’ knowledge and experience.  The simple message here is to be proactive and informed about your sleep health. 

September 28, 2010. CPAP Therapy Tips and Ideas. Leave a comment.